Coping and support

Caring for a child with a chronic condition such as neurofibromatosis can be a challenge. But many children with neurofibromatosis grow up to live healthy lives with few, if any, complications.

To help you cope:

• Find a primary care doctor you can trust and who can coordinate your child's care with other specialists. The Children's Tumor Foundation has an online tool to help you find a neurofibromatosis specialist in your area.
• Join a support group for parents who care for children who have neurofibromatosis, ADHD, special needs or chronic illnesses in general.
• Accept help for daily needs such as cooking, cleaning or caring for your other children or simply to take a needed break.

Seek academic support for children who have learning disabilities.